Transforming Care – support for CYP with Autism and/or a Learning Disability who are at risk of requiring an in-patient stay due to Mental Health Needs
Bedfordshire Luton and Milton Keynes Integrated Care Board (BLMK ICB) are committed to supporting children and young people who have a learning disability and/or autism, and their families. The Dynamic Support Register (DSR) and Care Education Treatment Reviews (CETRs) are tools designed in line with NHS National and Local arrangements for Transforming Care. These enable teams of practitioners across all service areas to early identify children and young people with learning disabilities and/or autism who are at risk of being admitted to a mental health hospital (Tier 4), to offer dynamic support.
The DSR and CETRs are essential elements of the pathway to provide appropriate support and care at the right time, so that children and young people can lead the typical lives they want to; achieve their ambitions and aspirations in life and stay safely and healthily at home or within other community settings.
Please see the Dynamic support register and Care (Education) and Treatment Review Policy and guidance.
Why should I /my child or young person be added onto the Dynamic Support Register?
The Dynamic Support Register (DSR) is used to enable children and young people who have been identified as at risk, to receive specific and timely support that is personalised to meet their needs and aimed to prevent an avoidable hospital admission.
In working together with children, young people and their families and multiagency professionals involved in their care, BLMK ICB can better understand and overcome system barriers to enable those individuals who would otherwise be at risk of admission, to remain safely supported at home or within their community setting. The DSR also identifies children and young people who are currently experiencing in-patient admission, enabling them early and robust discharge planning and transition back home or to their community residence.
Children and young people with a learning disability and/or autism who may be considered for DSR addition include if they:
- Are currently placed within a mental health hospital setting
- Have had a previous mental health hospital stay within the last 12 months
- Are residing within 52-week social care or educational placement
- Are / or were involved with the youth or criminal justice system
- Are in receipt of services from youth offending teams (YOT)
- Are accessing (or in the process of accessing), specialised services because of their escalating challenging behaviours (e.g., intensive support services and specialist residential care)
- Are subject to provisions of the Mental Health Act and / or Deprivation of Liberty safeguards.
Each person on the DSR is given a RED, AMBER, or GREEN rating dependent upon how high their risk of admission is. A BLUE rating additionally identifies those children and young people currently placed within a mental health inpatient service.
Why should I / my child or young person have a CETR?
Children and young people who are being considered for a mental health hospital admission (Tier 4) and need extra support in safely avoiding this, have the right to a Care, Education, Treatment Review (CETR). The CETR makes sure that local services (e.g., Child Adolescent Mental Health Services (CAMHS), Children’s Social Care, Special Educational Needs (SEN) Team and school or college etc.) work collaboratively with the child or young person and their family to address and resolve barriers to enabling them to safely remain within the community setting (or to keep necessary children or young people inpatient stays as short as safely possible), by being creative and effective with the use of partnered resource.
If the child/young person is over 18 years, this will be called a Care Treatment Review (CTR).
How do I request to be on the DSR or have a CETR?
A child/young person with autism and/or learning disabilities or their parents/carers (on their behalf), can request consideration to be added to the DSR and have a CETR. The examples listed above are not exhaustive and further guidance around when and how to make a referral can be provided by professionals involved in your care, or by contacting the BLMK ICB Integrated and Personalised Care Team on: blmkicb.cyptcp@nhs.net
Professionals working with you can also make the referral with your consent.
Please find Transforming Care Children and Young People’s Self-Referral Pathway and Transforming Care Children and Young People’s Self-Referral Form. Which has been coproduced by Autism Bedfordshire.
Find out more about the DSR and CETRs:
https://learningdisabilitymatters.co.uk/working-together/cetr/
New Co-produced Dynamic Support Register & Care Education and Treatment Review leaflets for Autistic people aged 16 - 25 years
NHS England’s, Learning Disability and Autism programme have co-produced a set of Dynamic Support Register & Care Education and Treatment Review leaflets for Autistic people aged 16 - 25 years. The leaflets aim to empower young people to better understand the process and benefits of deciding whether to be on a DSR, to have a C(E)TR and to be actively involved in this process. Visit the DSR CETR webpages for further information about the policy.
You can also listen to Conor, a C(E)TR panel member and autistic person, talk about how the policy has been strengthened by being coproduced with people with lived experience.